Action Cerebral Palsy spearheading a number of new public and policy initiatives
- If in Doubt, Check it Out – We are going to be launching a public awareness campaign about the warning signs of cerebral palsy in very young children as too many babies and young children are missing out on the early referral and treatment they critically need because of the lack of knowledge of these early presenting features amongst the public and some primary healthcare professionals. We will provide you with information that you can share with your constituents.
- A number of authorities have already expressed an interest in our Cerebral Palsy Covenant which is intended to tackle the postcode lottery of provision and ensure children with cerebral palsy across the country get the same level of care. We have written to the leaders of every local council in England to take up this call to recognise that the complex and varied needs of the cerebral palsy community require close working across several widely differing areas. #CerebralPalsyCovenant
- Finally, Action Cerebral Palsy is proud to be co-sponsoring the forthcoming sessions of the APPG on Cerebral Palsy which will be focusing on transitioning to adult services and accessing social and recreational activities. The APPG secretariat will be publishing a call for evidence soon and we ask you to share this within your constituency to encourage young adults with cerebral palsy, their families, local charities, social services providers, schools, colleges and businesses to provide evidence about their experiences, both good and bad, so that the evidence to the APPG captures experiences from across the UK.
Action CP was pleased to welcome policy makers, local government representatives, leading clinicians and healthcare professionals, SEN educators, funders and parents of children with cerebral palsy and young adults with cerebral palsy to an evening reception at the House of Commons on Monday, 21st March 2022 to launch its 5 Year Strategy & Impact Report.
More about Action Cerebral Palsy: Action Cerebral Palsy began in 2013 as a consortium of specialist charities working with children with cerebral palsy and their families and became a registered national charity in 2016. Our staff and trustees have first-hand experience working and living with cerebral palsy. Action Cerebral Palsy’s objective is to ensure that all children with cerebral palsy wherever they live in the UK have the best possible start to life and ongoing help and support.