We are working towards a vision where every one of the 30,000 children and young people with cerebral palsy in the UK is able to access from birth onwards the very best possible intervention, care, education and support which meets their complex and changing needs.
Our vision is that every child and young person in the UK with cerebral palsies is able to access from birth onwards the best possible intervention, care, education and support which meets their complex and changing needs.
Action Cerebral Palsy will work towards improving public, professional and political awareness of cerebral palsy and the issues facing children and young people living with cerebral palsies and their families. We are committed to facilitate the development of models of best practice at national and local levels.
Back in 2013 at the start, we were a national consortium of specialist charities working with children with cerebral palsies and their families. In 2016, Action Cerebral Palsy became a registered charity to further our mission, and since then, we have sought to establish the facts about what early care is available for children with cerebral palsy and been a key contributor to the NICE (National Institute for Health and Clinical Excellence) guidelines Cerebral palsy: assessment and management in children and young people under 25 (2017).
The team at Action CP all have lived experience of living with, supporting, teaching, treating and parenting children (and now adults) with cerebral palsy. To improve our community of children and young people’s access to the very best care, education and support, we are focusing on the following areas:
Improved understanding of the needs and challenges facing children with cerebral palsy and their families and improved data collection about the incidence, diagnosis, medical history and outcomes of children with cerebral palsy to facilitate research and provision planning.
To read more about our research:
Education for the public and professionals to increase their awareness and knowledge of the early signs of cerebral palsy and the urgency of referral for expert assessment and follow-up.
To read more about our new public awareness campaign about the warning signs of cerebral palsy in very young children:
Implement best practice national pathways of care from birth onwards throughout the UK and the development of a network of regional multi-disciplinary centres of excellence for infants and children with, or at risk of, neuro-disabling conditions such as cerebral palsy.
To learn more about what is already happening in this area: